Privacy Policy

Root Cause Tracker
October 2018

Root Cause Tracker (“Root Cause Tracker“, “we,” “us” and “our“) is committed to respecting the privacy rights of users of our website (“Website“), our mobile phone applications (the “Applications“), platforms, or any Content or information provided as part of these services (collectively, the “Services“). 

Root Cause Tracker created this Privacy Policy (the “Privacy Policy“) to explain its information collection and use practices and the protection of your information when you visit and use the Website, Applications or any of our Services. Any terms capitalized but not otherwise defined herein shall have the respective meanings set forth in the Terms & Conditions.

Being open about one’s health, illnesses and lifestyle is not for everyone, and we strive, with full transparency, to outline the benefits and risks of being part of this sharing site, including those related to privacy. This Privacy Policy outlines the type of information Root Cause Tracker collects from individuals who have registered to use/join Root Cause Tracker (“Members“) and how it is shared with other third parties, including, but not limited to medical device companies, non-profits, and research institutions (“Partners“).

We reserve the right to modify this policy at any time, and without prior notice, by posting an amended Privacy Policy and terms on this website. We encourage Members to review this policy periodically for any updates.

What type of information we collect…

Shared Data

◦Some of the information that Members provide about themselves may be shared with the Root Cause Tracker community, Partners, and others in an anonymous aggregate format (“Shared Data“). Examples of Shared Data that Members may submit at the Services may include:

◦Biographical information, e.g., name, sex, age/birthday, location (country), ethnicity;

◦General health information, e.g., self-assessed health scale, level of activity, occupation;

◦Symptom information, e.g., specific symptoms, severity, duration;

◦Information shared via free text fields, e.g. the forum or public comments.

In the course of using the Services, Members may share information that could be used to reasonably identify them (“Personal Information“), including name, photograph, and email address. When a Member chooses to share Personal Information via a free text field (e.g. blog comments) and photos or images, the information shall be treated as Shared Data.

Restricted Data

Some of the information that Members enter into certain fields when registering to use or using the Services will not be shared (“Restricted Data“). The type of Restricted Data that Members may submit at the Services may include:

◦Email address, as collected and verified as part of registration or in a Member’s Account Information;

◦Password, as collected as part of registration or in a Member’s Account Information;

◦Date of birth, as collected during account registration; and

◦When a Member enters Personal Information, including date of birth and email address, as part of registering to use Root Cause Tracker, that Personal Information is treated as Restricted Data.


A cookie is a small data file that often includes an anonymous, unique token, which is sent to your browser from a website’s computers and may be stored on your computer’s hard drive. 

Two types of cookies are required to use the Services:

1) Session Cookies are temporary cookies that remain only until you log out of the website or exit your web browser. Session Cookies do not store any Personal Information, only a unique visitor ID number that may be used to ensure Members are properly authenticated and can view site information.

2) Persistent Cookies remain in the cookie file of your browser for much longer, even after you leave the Services. Persistent Cookies also do not store any Personal Information. Persistent Cookies store preferences that should persist from visit to visit, like “Remember Me,” and a unique token to enable us to understand how Members use the Services (“Services Usage“).

How your data is used

Members should expect that every piece of information they submit (even if it is not currently displayed), except for Restricted Data, may be shared with Partners but only with explicit permission from Members. 

There are instances where both Shared Data and Restricted Data, including Personal Information, may be used and disclosed including, but not limited to, the following:

Root Cause Tracker uses Shared Data, Restricted Data, and Services Usage internally, as needed, for research, for maintenance and operation of the Services, and to create the best possible tools and functionality for patients.

Root Cause Tracker may share or disclose a Member’s data where required by law or to comply with legal process.

In the event Root Cause Tracker goes through a business transition, such as a merger, acquisition by another organization, or sale of all or a portion of its assets, the Shared Data and Restricted Data, including Personal Information, might be among the assets transferred. Members will be notified via this Services of any such change in ownership or control of Personal Information.

How Shared Data is Used

Shared Data is viewable through aggregated reports that may be made available to Root Cause Tracker Partners in case of a business transaction where Root Cause Tracker involved or Partner has the desire to look at the data for research purposes. In some instances, this Shared Data is may be viewable to those not registered to join Root Cause Tracker (“Non-members”), for example, Root Cause Tracker employees servings as Admins.

In addition to serving the individual needs of our Members, Root Cause Tracker and its Partners are interested in better understanding the Member experience and providing treatment ideas and options. 

Root Cause Tracker provides Shared Data, in aggregate format, to Partners and other third parties for use in scientific research. When sharing this information, Root Cause Tracker removes Members’ Restricted Data to reduce the likelihood of re-identification prior to sharing information with Partners.

Root Cause Tracker may also report individual adverse event and drug safety information to the FDA, CDC, and/or other regulatory bodies (U.S. and international) as well as directly to pharmaceutical and biotechnology companies. Root Cause Tracker does not provide Restricted Data to such regulatory bodies, although we reserve the right to contact Members for follow-up at the request of agencies or Partners. The information Root Cause Tracker reports includes, but is not limited to, all of the information about the Member and/or free text or images on the forums or evaluations, which may include Shared Data.

Root Cause Tracker, like most Internet communities, is a public forum, and Members acknowledge and accept that any information shared through free text or images might be connected to Members’ Shared Data (which may be shared with or displayed for others). For example, if a Member puts his or her name (or other Personal Information) into a free text field like blog comments, the Member should know this information may be included in what is shared with or displayed for Partners.

How Restricted Data is Used

Restricted Data is not automatically shared with, sold to, or displayed for other Members or Partners. Specific instances where Restricted Data may be used include, but are not limited to, the following:

◦If a Member provides a date of birth, the Member’s date of birth will be viewable via My Profile;

◦If a Member explicitly opts in to have their Restricted Data shared with a Partner, Root Cause Tracker will share the information as instructed by the Member (e.g. co-registration with a non-profit);

◦If a Member makes a request, Root Cause Tracker may use Restricted Data, including sharing the Member’s Restricted Data with software/service vendors, for the purpose of fulfilling the request. Examples include requesting to receive the company newsletter via email or requesting an email response from the Root Cause Tracker support team.

Other security issues

Root Cause Tracker cannot guarantee the identity of any other Member with whom a Member may interact in the course of using the Services via blog comments. Additionally, we cannot guarantee the authenticity of any data that Members may provide about themselves.

Finally, Members should know that Root Cause Tracker takes commercially reasonable technical precautions to help keep Member data secure.

Risks and benefits

While our goal is to help Members improve their health, there are no guaranteed benefits to using the Root Cause Tracker app or website. However, keeping track of personal lifestyle choices. treatments, and symptoms has been shown to be helpful in improving overall health and determining what is causing disease and health issues.

There are also no known risks to using this app and/or website, but there is a possibility that users may feel uncomfortable sharing information online in the blog section of website. It is possible that a Member could be identified using information shared on Root Cause Tracker (and/or in conjunction with other data sources). A Member could be discriminated against or experience repercussions as a result of the information shared. For example, it is possible that employers, insurance companies, or others may discriminate based on health information.

Members should understand that anyone can download and register the Root Cause Tracker app. If you are reading this Privacy Policy because you have access to the Personal Information of a Services participant, we urge you to recognize and fulfill your responsibility to protect the privacy of that person.

In using the Services, Members are free to skip any non-required questions or data fields that make them feel uncomfortable. Members are also free to stop using this service at any time. If a Member chooses to deactivate his/her account, Root Cause Tracker will not display or share the data in that account with Partners as of the date of deactivation. However, the Member’s data will remain in the system for auditing purposes, and research conducted prior to the deactivation of a Member’s account will still include the Member’s data.

Questions about the Privacy Policy

If you have questions or comments about our Privacy Policy, email us at, or contact us at:

Root Cause Tracker
45 Glacier Vista Trail
Whitefish, MT 59937

Root Cause Tracker © 2018